Some people only dream of angels, we held one in our arms.
On January 22, 1998, our family welcomed a beautiful baby girl, Alexandria Nicole Daly, into the world. As with all births, this changed our lives irrevocably. Unlike most other births, we had to say good-bye as our daughter’s earthly life was only beginning.
She died in my arms just shy of a week after her birth. This, too, profoundly changed our lives. Returning home from the hospital with empty arms and heavy hearts, our new normal began. I was not prepared for the intense grief I would face in the following months. I longed for our daughter. I was also unprepared for the isolation I would experience.
I attended support groups where I shared my story in the presence of moms like me. This was very healing. As time passed, the intense feelings were replaced by a quiet longing. It was time to help other parents. I was invited to join a family-centered care program called Family as Faculty at Riley Children’s Hospital in Indianapolis. As a pioneer member of this program, I shared my story about Alexandria with hospital staff, medical residents, and nursing students to help them look at the experience through the lens of the parent.
I was unprepared for the gift this provided me: continued healing through sharing my story. My family has practiced rituals that have given me comfort through the years: releasing pink balloons with notes attached to Alexandria on her birthday and decorating a small Christmas tree in her memory.
This experience led me to return to school. I earned my masters degree in social work in 2006 from Indiana University School of Social Work. I currently work as a medical social worker at St. Vincent Carmel Hospital in Carmel, Indiana, and as a bereavement counselor at St. Vincent Hospice in Indianapolis.
I received a sympathy card in the days following Alexandria’s death. It sums up my feelings regarding the healing and grace that have transpired. The card simply says, Eventually Peace.
My experience in making meaning of the death of my daughter mirrors the goal of bereavement intervention, as outlined in research. As Capitulo (2007) notes, professionals can facilitate healing with bereaved families by validating grief, facilitating rituals, providing mementos, and letting the bereaved tell their stories.
Particularly helpful for parents is the use of ritual. Rituals provide the opportunity to create meaning. Intervention is best done by gently guiding parents to allow the experience to be meaningful for them (Kobler, Limbo, & Kavanaugh, 2007). In a society that largely ignores perinatal and neonatal death and the families’ subsequent grief, it is a gift for caregivers to help parents to acknowledge their loss and fully express their emotions.
A person’s a person, no matter how small. ~Dr. Seuss
Amy Daly 2010
Tags: grief, hope
I, too, have experienced the loss of my beautiful daughter. Shirley Grace was born November 15, 2009 at just 23 weeks. She was perfectly formed and beautiful, and held on to life for 90 long minutes. My husband and I were so blessed to be her parents, even for such a short time. And her tiny life has had far-reaching effects, and transformed many lives, dreams, and hearts. I have been very fortunate to be part of an amazing Grief Workshop here in Northern Colorado and it has allowed me to share my story to bring healing to both myself and others. Thank you for your story and the work you are doing to make perinatal loss more bearable for those of us “chosen” to walk this road.
*I am a friend of a friend of your twin sister. Amy Stollsteimer sent me your story.
I, too, suffered the loss of an infant, and received extra ordinary support from friends and family. Amy’s story touched me deeply! Thank you!
I’m thinking about you, Rachael, as the two year birthday/anniversary of your precious daughter approaches. I found that sharing my story has been so healing. It’s been such a gift. I am so glad that you are finding that to be healing, too. Gentle hugs to you. Amy
Amy – I just read your Roses in December article in the newsletter I get from the NYS Center for Sudden Infant Death. My family lost our third daughter, Jessica, to SIDS AUgust 17, 2009 at 3 months. At the time my other daughters, Alyssa & Mikayla, were 3-1/2 & 2, respectively. Jessie was to be our last child and the completion of our circle. The loss of of precious girl was beyond anything I can describe. After a long 7 months her death was classified as SIDS with no explanation. She was perfect in every way. Even though its been a long 2 years I connected with your article on many levels but mainly on the points of being gentle with myself & the longly for my child. I can’t imagine how I will feel 12 years from now. We now have another beautiful daughter, Lindsey, who is two months old. Our decision to have another child was quite difficult and my fear is crazy right now. I have a great husband & kids, had grief therapy, supports groups & a very supportive family base, but I have never been so scared of everything in my life.
Just wanted to let you know that your article touche!d deep into my heart. Thank you
Hi Rockette~ Thank you for sharing your story. I am so sorry about the loss of your precious daughter. I have known your fear. Experiencing the loss of a baby forever changes one. It does get easier. Please do be gentle with yourself and know that others have walked this path and survived. I will keep you in my thoughts this holiday season.
Gentle hugs to you~
Amy